【Cubic Zine Issue 34】Invisible Wings of Empowerment — Phyllis Wong and People with Intellectual Disabilities Co-create a Life Planning APP

60 years ago, CUHK pioneered the first Undergraduate Program in Social Work in Hong Kong, attracting high-quality faculty. To date, the Department of Social Work has nurtured over 8,400 graduates who shine in frontline, management, and research positions. This issue of Cubic Zine focuses on Dr. Wong King-shui Phyllis, a senior lecturer and chairperson of Undergraduate Program and Curriculum Committeein the Department of Social Work.

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Aim Higher and Dream Bigger — Co-creation Between Friends With Intellectual Disabilities and Social Welfare Organizations

Dr. Wong King-shui Phyllis advocates for self-determination and life planning for people with intellectual disabilities. Through extensive collaboration, her team started from scratch, recruiting subjects, repeatedly researching solutions, and producing instructional videos. Finally, this year, their e-learning resources were successfully launched.

Despite the poor weather on the day of the launch and sharing event last month, with the Observatory issuing yellow and red rainstorm warnings, over 400 people attended to witness the achievements. Both on and off stage, there was a palpable sense of excitement and satisfaction.

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【Cubic Zine Issue 30】Stand by Patients with Rare Diseases: Geneticist-Cum-Entrepreneur Edwin Chan Persisting in Scientific Research for Over 30 Years, Developing AI Communication Tools to Decode the Unspoken Love among Silent Sufferers

Edwin Chan, a Professor at the School of Life Sciences , The Chinese University of Hong Kong (CUHK), specializing in neurological diseases, has dedicated his life to researching these rare conditions. With an impressive academic background, including a doctoral degree from the University of Cambridge, he has led a team that successfully uncovered the causes of spinocerebellar atrophy (SCA) . During the two-hour interview, Edwin shared the unfortunate “social reality”: high costs and limited resources in rare disease pharmaceutical development often leave families battling with despair against death.

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“AI Phonograph” for Rare Disease Patients

Behind the Voice Link project is a mentor who is willing to give opportunities and a group of like-minded students.

Ceci from Cell and Molecular Biology Programme used to be Edwin’s lab assistant, fortunate enough to study the probability of developing spinocerebellar atrophy (SCA) in patients under Edwin’s guidance. After returning from overseas exchange, she had deeper thoughts: How can we transform the academic knowledge we have learned and researched into real help for rare disease patients?

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