Edwin Chan, a Professor at the School of Life Sciences , The Chinese University of Hong Kong (CUHK), specializing in neurological diseases, has dedicated his life to researching these rare conditions. With an impressive academic background, including a doctoral degree from the University of Cambridge, he has led a team that successfully uncovered the causes of spinocerebellar atrophy (SCA) . During the two-hour interview, Edwin shared the unfortunate “social reality”: high costs and limited resources in rare disease pharmaceutical development often leave families battling with despair against death.